Support services for Long COVID, ME/CFS, fibromyalgia and POTS

235 support services across seven countries: patient organizations, support groups and helplines.

Australia (10)

Emerge ACT Canberra
Illawarra ME/CFS, FM and Long COVID Support Group Wollongong
ME/CFS and FM Queensland (ME/CFS/FM Support Association QLD Inc) Toowoomba
Australian POTS Foundation South Australia
Bridges and Pathways Institute (also known as Fibromyalgia Australia) South Australia
Hobart ME/CFS Support Group Hobart
Emerge Australia Melbourne
ME/CFS Australia Ltd (national peak body) Victoria
Invisible Illnesses Inc (formerly Fibro and Us) Mandurah
ME/CFS and Lyme Association of WA Perth

Canada (28)

Alberta Health Services, long COVID resources and supports by zone (Rehabilitation Advice Line) Alberta
MyHealth Alberta, After COVID-19: information and resources to help you recover Alberta
ME|FM Society of BC Vancouver
Shared Health Manitoba, long COVID services available without a prescriber (regional guides) Manitoba
CareNow Ontario (formerly Myalgic Encephalomyelitis Association of Ontario) Toronto
Fibromyalgia Association Canada (FAC) Windsor
Waterloo Wellington Myalgic Encephalomyelitis Association Kitchener
AQEM, Association quebecoise de l'encephalomyelite myalgique Montreal
Association Fibromyalgie de Duplessis (Cote-Nord) Quebec
Association de fibromyalgie et de fatigue chronique Vaudreuil-Soulanges (AFSFC-VS) Quebec
Association de la Fibromyalgie du Bas-Richelieu (AFBR) Sorel-Tracy
Association de la fibromyalgie Region Chaudiere-Appalaches (AFRCA) Quebec
Association de la fibromyalgie de l'Estrie (AFE) Sherbrooke
Association de la fibromyalgie des Laurentides Quebec
Association de la fibromyalgie et de douleurs chroniques de Lanaudiere Quebec
Association de la fibromyalgie, Region Monteregie (AFRM) Quebec
Douleur chronique Outaouais (DCO) Gatineau
Fibromyalgie Montreal (Association de la fibromyalgie, Region ile de Montreal) Montreal
Fibromyalgie Region de Quebec Quebec City
Societe quebecoise de la fibromyalgie (SQF) Quebec
Lung Saskatchewan, Long COVID resources and Lung Helpline Saskatchewan
Saskatchewan Health Authority, Long COVID (Post-COVID-19 Condition) Self-Management Resource Saskatchewan
COVID Long-Haulers Support Group Canada Nationwide and online
Long COVID Canada (online support group) Nationwide and online
Long COVID Kids Canada (online support group for parents and guardians) Nationwide and online
Long COVID Web (Canadian long COVID research network) Nationwide and online
MyGuide: Long COVID (interactive self-management tool, Long COVID Web and PHSA) Nationwide and online
National ME/FM Action Network Nationwide and online

Germany (56)

Fatigatio regional group Großraum Stuttgart Online Stuttgart
Fatigatio regional group Stuttgart-Böblingen Böblingen
German Fibromyalgia Association (DFV) Seckach
ME-LB, ME/CFS self-help group Ludwigsburg Ludwigsburg
ME/CFS self-help Freiburg Freiburg
ME/CFS self-help group Nürtingen Nürtingen
ME/CFS self-help group Team Science Ulm and Neu-Ulm Ulm
Fatigatio regional group Augsburg Augsburg
Fatigatio regional group Roßhaupten (Allgäu) Roßhaupten
ME/CFS, Post-COVID and Post-Vac self-help group Bad Tölz Bad Tölz
Parents' initiative for children and adolescents with ME/CFS München
Self-help group Long-Covid, Post-Covid, Post-Vac, ME/CFS Aschaffenburg Aschaffenburg
Chronically exhausted 1, ME/CFS self-help group Steglitz-Zehlendorf Berlin
Chronically exhausted 3, ME/CFS and Long COVID women's group Steglitz-Zehlendorf Berlin
Counselling centre for people with post-viral illnesses in Berlin Berlin
Fatigatio e.V., German Federal Association ME/CFS Berlin
Fatigatio regional group Berlin Berlin
ME/CFS open self-help group Charlottenburg-Wilmersdorf Berlin
ME/CFS self-help group Treptow-Köpenick Berlin
Self-help group for ME/CFS, Post-Vac and Post-COVID Berlin-Pankow Berlin
Online self-help group Long COVID, ME/CFS, Post-Vac Potsdam Potsdam
Empty Stands, football fans with Long COVID and ME/CFS Hamburg
Fatigatio regional group Hamburg Hamburg
German Society for ME/CFS Hamburg
Fatigatio regional group Frankfurt am Main Frankfurt am Main
Fatigatio regional group Fulda-Osthessen Fulda
Fatigatio regional group Kassel Kassel
Self-help group Long COVID Gelnhausen Gelnhausen
Self-help group Long COVID Hanau Hanau
Self-help group for Post-COVID, Post-Vac and ME/CFS Marburg Marburg
Fatigatio regional group Greifswald Greifswald
Fatigatio regional group Mecklenburg-Vorpommern Mecklenburg-Vorpommern
Long Covid Hannover self-help group Hannover
Netzwerk ME-CFS Hannover self-help group Hannover
Self-help group Long COVID and ME/CFS Ostfriesland Marienhafe
Self-help group Long COVID, ME/CFS and Post-Vac Grafschaft Bentheim Grafschaft Bentheim
Fatigatio regional group Aachen Aachen
Fatigatio regional group Münster Münster
Long COVID Deutschland Greven
Long Covid NRW Nordrhein-Westfalen
Long Covid Netzwerk e.V. (Höxter) Höxter
Parents of children with ME/CFS, Long COVID or Post-Vac (Kreis Kleve) Geldern
PoTS and other Dysautonomias e.V. Bochum
Self-help group ME/CFS and Long COVID Ahaus Ahaus
Fatigatio regional group Ludwigshafen Ludwigshafen am Rhein
Long Covid Mainz self-help group Mainz
Self-help group Long COVID and ME/CFS Wilsdruff Wilsdruff
UNSICHTBAR self-help group for ME/CFS, Long COVID and Post-Vac Meißen Meißen
Fatigatio regional group Lübeck Lübeck
Self-help for ME in Thuringia Jena
Self-help group for Post-COVID, Post-Vac and ME/CFS Weimar Weimar
k.o. Co19 self-help group Gotha Gotha
BMG Long COVID citizens' helpline Nationwide and online
Fatigatio regional group Youngster im Fatigatio (ages 16-36) Nationwide and online
NichtGenesen Nationwide and online
NichtGenesenKids e.V. Nationwide and online

Norway (22)

Norwegian ME Association, Aust-Agder regionlag Agder
Norwegian ME Association, Vest-Agder regionlag Agder
ME-foreldrene (parents of children with ME) Akershus
Norwegian Fibromyalgia Association Drammen
Norwegian ME Association, Buskerud fylkeslag Buskerud
Norwegian ME Association, Finnmark fylkeslag Finnmark
Norwegian ME Association, Innlandet fylkeslag Innlandet
Norwegian ME Association, Møre og Romsdal fylkeslag Møre og Romsdal
Recovery Norge Møre og Romsdal
Norwegian ME Association, Nordland fylkeslag Nordland
Norwegian Covid Association Oslo
Norwegian ME Association Oslo
Norwegian ME Association, Oslo og Akershus fylkeslag Oslo
Norwegian ME Association, Rogaland fylkeslag Rogaland
Norwegian ME Association, Telemark regionlag Telemark
Norwegian ME Association, Troms fylkeslag Troms
Norwegian ME Association, Trønderlag fylkeslag Trøndelag
Norwegian ME Association, Vestfold regionlag Vestfold
Norwegian ME Association, Vestland fylkeslag Vestland
Norwegian ME Association, Østfold fylkeslag Østfold
Norwegian ME Association support phone line Nationwide and online
ReHabiliteringstelefonen (national rehabilitation information line) Nationwide and online

Switzerland (12)

Long Covid self-help group Langenthal Langenthal
Long Covid self-help group Lyss Lyss
Post-Covid self-help group Bern Bern
Lungenliga Zentralschweiz Emmen
Ligue pulmonaire neuchâteloise Peseux
Lungenliga Thurgau Weinfelden
Lungenliga Thurgau Long COVID coaching Thurgau
Altea Long COVID Network Zürich
ME/CFS Association Switzerland Zürich
Swiss Society for ME & CFS Zürich
Long Covid Kids Schweiz Nationwide and online
Long Covid Schweiz Nationwide and online

United Kingdom (28)

Action for M.E. Bristol
The ME Association Buckingham
Sussex & Kent ME/CFS Society Brighton
Fibromyalgia Action UK (FMA UK) England
Invest in ME Research England
Long Covid Kids England
Long Covid SOS England
Long Covid Support (Long Covid UK) England
Physios for ME England
PoTS UK England
The Young ME Sufferers Trust (Tymes Trust) England
FibroAwareness, Dulwich London
UK Fibromyalgia Greater London
Hope 4 ME & Fibro Northern Ireland Newry
Chest Heart & Stroke Scotland, Long Covid support Scotland
Long Covid Scotland Scotland
ME Research UK Greenock
Tayside, Angus and Perthshire Fibromyalgia Support Group Scotland
The 25% ME Group Scotland
West Lothian Fibromyalgia Support Group Scotland
West Lothian ME Self Help Group (WLMESH) Scotland
Weston-super-Mare Fibromyalgia Support Group Weston-super-Mare
Sheffield ME and Fibromyalgia Group Sheffield
Swansea Bay Fibromyalgia Support Group Swansea
WAMES (Welsh Association of ME and CFS Support) Wales
STARS (Syncope Trust And Reflex anoxic Seizures) Warwickshire
Swindon Foggys Swindon
Long COVID Physio Nationwide and online

United States (79)

Dysautonomia International Alabama Support Group Alabama
Dysautonomia International Alaska Support Group Alaska
Dysautonomia International Arizona Support Group Arizona
Dysautonomia International Arkansas Support Group Arkansas
Dysautonomia International California Support Group California
Open Medicine Foundation Agoura Hills
Solve M.E. (Solve ME/CFS Initiative) Los Angeles
Dysautonomia International Colorado Support Group Colorado
Rocky Mountain CFS/ME and FM Association Denver
Dysautonomia International Connecticut Support Group Connecticut
Dysautonomia International Delaware Support Group Delaware
Dysautonomia International Florida Support Group Florida
The Dysautonomia Project Florida
Dysautonomia International Georgia Support Group Georgia
Dysautonomia International Hawaii Support Group Hawaii
Dysautonomia International Idaho Support Group Idaho
Dysautonomia International Illinois Support Group Illinois
Dysautonomia International Indiana Support Group Indiana
Dysautonomia International Iowa Support Group Iowa
Dysautonomia International Kansas Support Group Kansas
Dysautonomia International Kentucky Support Group Kentucky
Dysautonomia International Louisiana Support Group Louisiana
Dysautonomia International Maine Support Group Maine
#MEAction Maryland State Chapter Maryland
Bethesda ME/CFS/FM Support Group Bethesda
Dysautonomia International Maryland Support Group Maryland
Dysautonomia International Massachusetts Support Group Massachusetts
Massachusetts ME/CFS & FM Association (MassME) Massachusetts
Dysautonomia International Michigan Support Group Michigan
Dysautonomia International Minnesota Support Group Minnesota
Dysautonomia International Mississippi Support Group Mississippi
Dysautonomia International Missouri Support Group Missouri
Dysautonomia International Montana Support Group Montana
Dysautonomia International Nebraska Support Group Nebraska
Dysautonomia International Nevada Support Group Nevada
Dysautonomia International New Hampshire Support Group New Hampshire
Dysautonomia International New Jersey Support Group New Jersey
New Jersey ME/CFS Association New Jersey
Dysautonomia International New Mexico Support Group New Mexico
Dysautonomia International East Moriches
Dysautonomia International New York Support Group New York
Dysautonomia International North Carolina Support Group North Carolina
Dysautonomia International North Dakota Support Group North Dakota
Dysautonomia International Ohio Support Group Ohio
Standing Up to POTS Ohio
Dysautonomia International Oklahoma Support Group Oklahoma
Dysautonomia International Oregon Support Group Oregon
Dysautonomia International Pennsylvania Support Group Pennsylvania
Dysautonomia International Rhode Island Support Group Rhode Island
Dysautonomia International South Carolina Support Group South Carolina
Dysautonomia International South Dakota Support Group South Dakota
Dysautonomia International Tennessee Support Group Tennessee
Dysautonomia International Texas Support Group Texas
Bateman Horne Center Education and Support Groups Murray
Dysautonomia International Utah Support Group Utah
Dysautonomia International Vermont Support Group Vermont
Dysautonomia International Virginia Support Group Virginia
Northern Virginia CFS/ME, Fibromyalgia and Orthostatic Intolerance Support Group Virginia
Dysautonomia International Washington Support Group Washington
Dysautonomia International West Virginia Support Group West Virginia
Dysautonomia International Wisconsin Support Group Wisconsin
Dysautonomia International Wyoming Support Group Wyoming
#MEAction USA Nationwide and online
American ME and CFS Society (AMMES) Nationwide and online
Body Politic Nationwide and online
COVID-19 Longhauler Advocacy Project (C19LAP) Nationwide and online
Dysautonomia Information Network (DINET) Nationwide and online
Dysautonomia Support Network Nationwide and online
Fibromyalgia National Health Organization (formerly Support Fibromyalgia Network) Nationwide and online
Health Rising Nationwide and online
Long COVID Alliance Nationwide and online
Long COVID Justice Nationwide and online
Long COVID Physio Nationwide and online
Long Covid Families Nationwide and online
ME/CFS & Fibromyalgia Self-Help Program Nationwide and online
National Fibromyalgia Association Nationwide and online
Patient-Led Research Collaborative Nationwide and online
Phoenix Rising Nationwide and online
Survivor Corps Nationwide and online

A listing is not an endorsement. CFS Recovery hasn't reviewed the quality of care at any service in the Care Finder, and no money changes hands between us and any of them. Details change, so check with the service directly before you travel or book.

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